Monday 24 March 2014

One hundred and eighty six Euro and no Hoeness in the background

This post was originally posted in German on the World Life Vision blog on March 11th a week before my last translation last week. Sorry:
Aurela with  mum and nan
Aurela with mum and nan

"One hundred and eighty six  Euro and a few cent do the tablets cost that Ulf Hundeiker got from the pharmacy. Aurela does need Mercaptopurin again which is part of her maintenance therapy against her acute myelogenous leukaemia. Mostly he pays for it himself even though he does not have a lot himself but this time friends helped out. And those have not a lot either. Not that any of them could defraud millions in tax like former German footballer Uli Hoeness. 

That is a bit unpractical as the stem cell transplantation for Aurela, for which we fundraise, does cost up to 250 000 Euro. And until then expensive medication has to be sent to Kosovo. 

Aurela is now nearly three years old and grown enough to understand a lot of the whole thing. A while ago she asked her aunt: "Has Ulf send the tablets again?" Yes, he has. Even though a lot went topsy turvy this time and at first there was not enough delivered. Like this Aurela has won a little more time. But sometime the effect of the maintenance therapy will stop. Hopefully, Aurela will have new stem cells by then. 

You can help too with a donation to save her life. A little family in Kosovo would be eternally thankful!



Sunday 16 March 2014

Nearly good news from Aurela

Hardly after the latest tablets were sent to Aurela in Kosovo who suffers from leukemia, pretty good news
Aurela
Aurela on her swing
came back. The maintenance therapy which is meant to stop the return of the acute leukemia can be stopped. Which means her leukemia has stopped for now. Which means for Aurela: Not having to go to the hospital every four weeks for four days, not being stung by needles for injections and not feeling ill for a few days afterwards.

The results do not show any irregularities anymore. There are no degenerated blood cells anymore. Cancer is defeated for now.

Just for now though. Not for forever! Because a little rest still rests in the bone marrow of the nearly three year old girl from Kosovo. That is why hardly anything changes for us: She still needs a stem cell transplantation, which is the only chance to fully heal Aurela! Ulf Hundeiker who initiated the campaign "Please help Aurela" just does not have to send medication to Kosovo on a regular basis.

She will get another thorough examination. That will show how it will go on. If she needs therapy again. Or. Or. Or.

And it also means: A stem cell transplantation costs a fortune. Everybody can help with a donation!

Tuesday 4 March 2014

Aurela is a brave patient

Little Aurela who suffers from leukaemia is not even three years old. She will be in July. But two years ago no one believed she would even get to that age. But luckily she responds (still) well to the maintenance therapy, and that is how she has won a little time to get her lifesaving stem cell transplantation.

But this operation is not possible in Kosovo as there is no health insurance. Until then, she gets maintenance therapy every four weeks for four days which still works well.

Aurela on her swing
Since she is six months old, she gets pricked by doctors and nurses for blood tests and the chemotherapy. But Aurela is a brave girl ~ recently when she was at the doctor for a blood test her mother had to go to the toilet and Aurela stayed with the doctor.

She gave her hand freely to the doctor! Which she told her mother directly and proudly:" Mummy I have done the blood test by myself!"

She does know it is easier this way. She won't get used to it though. She has to suffer a few days from the aftermath of the chemotherapy, but she is back to her old self pretty fast. She does love dancing and singing too much.

Hopefully for a long time to come. Because we still do not have the necessary 250 000 Euro together for her stem cell transplantation. And we will need some time for it. We still do need a lot of money and help!

You can find the original German blog post here: WLV ~ Aurela ist eine tapfere Patientin